Friday, February 29 there will be the first European Day of rare diseases .
One day in his own way "rare" (February 29 appears on the calendar only once every four years, coinciding with the leap year) was thus chosen to turn the spotlight on a world of diseases "rare" according to the statistics of the incidence, little known by the public and significantly impacting on the quality of life of people who are affected
and their families.
Today, patients and their families are often the feeling of abandonment, of being are forgotten, the lack of a concrete and real in weighs charge of their daily needs by institutions and society.
Ben then be days like that of 29th February, because it can help to attract the attention of us all on reality often ignored when they are not experienced firsthand.
My hope, perhaps utopian today, but it is what will soon no longer necessary steps, though commendable, such as these. If you really happen, it means that the focus on rare diseases and those affected should be the norm, not only will the headlines for 24 hours as it does today. And every day of the year may be considered a full day
the title of rare diseases.
What do you think I ask too much?
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